Support for Patients, Parents and Public

Olivias vision was established n 2010 to provide information, support and advice for anyone affected by uveitis. 

BANNAR is a group of interested and committed professionals from medical, nursing, allied health professional and third sector backgrounds working in adolescent and young adult (AYA, aged 10-24) rheumatology.

CCAA incorporating JIA Matters is a small volunteer led charity run by a group of people who have been affected personally by Juvenile Idiopathic Arthritis (JIA) or other paediatric rheumatological conditions. We are passionate about providing support for children with JIA and their families. We hold two annual family support weekends as well as a running a network of local area support groups with local area parent reps.

Juvenile Arthritis Research undertake research into JIA and are working to raise awareness that children and young people get arthritis (www.jarproject.org). They have launched the #ThinkJIA campaign to help support early referrals to specialist rheumatology services to enable early diagnosis of JIA (www.thinkjia.org)

EATC4Children is a consortium delivering translational biomedical research, from early lab-based studies to clinical trials, in childhood arthritis and related musculoskeletal disorders.

YOURhuem is a group for 11 – 24 year olds across the UK with diagnosed rheumatic conditions to advise, input and shape current adolescent and you adult rheumatology research

SNAC (Scottish Network for Arthritis in Children)  is a charity formed by parents of children affected by childhood arthritis. It aims to provide a support network for affected families and raise awareness of the condition.

SNAC, run entirely by volunteers connects families across Scotland and helps to remove the isolation many feel. SNAC hosts educational and fun events for the whole family in collaborations with SPARN (Scottish Paediatric and Adolescent Rheumatology Network) who provide the educational component.

More info about SNAC can be found on their website www.snac.uk.com

The National Rheumatoid Arthritis Society (NRAS), is the only patient-led organisation in the UK specialising in rheumatoid arthritis (RA) and juvenile idiopathic arthritis (JIA).

Due to its targeted focus on RA and JIA, NRAS provides truly expert and wide-ranging services to support, educate and campaign for people living with these complex autoimmune conditions,

their families and the health professionals who treat them. Their vision is to support all with RA or JIA to live life to the full.